Movement Disorders Clinical Trials in Boston, Massachusetts

6 studies are recruiting for movement disorders in Boston, Massachusetts right now. Each one is listed on ClinicalTrials.gov, the public registry the research teams themselves file with. TrialBoost is not a doctor, a research site, or a study sponsor: the research team decides who takes part.

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Studies now recruiting

1. Hereditary Spastic Paraplegia Genomic Sequencing Initiative (HSPseq)

   The purpose of the HSP Sequencing Initiative is to better understand the role of genetics in hereditary spastic paraplegia (HSP) and related disorders. The HSPs are a group of more than 80 inherited neurological diseases that share the common feature of progressive spasticity. Collectively, the HSP…

   Stage

   Not phased

   Ages

   0 to 30

   Site

   Boston Children's Hospital, Boston, Massachusetts

   Run by

   Boston Children's Hospital

   See if you can join NCT05354622 on ClinicalTrials.gov

2. A Retrospective Survey-based Multicenter Study to Delineate the Molecular and Phenotypic Spectrum of Epilepsy-dyskinesia Syndromes

   The Epilepsy-Dyskinesia Study aims to advance the understanding of the clinical and molecular spectrum of epilepsy-dyskinesia syndromes, monogenic diseases that cause both movement disorders and epilepsy. Addressing challenges in rare disease research -such as small, geographically dispersed patien…

   Stage

   Not phased

   Ages

   0 to 18

   Site

   Boston Children's Hospital, Boston, Massachusetts

   Run by

   Boston Children's Hospital

   See if you can join NCT06585605 on ClinicalTrials.gov

3. A Multicenter Pediatric Deep Brain Stimulation Registry

   There is limited data on outcomes for children who have undergone deep brain stimulation (DBS) for movement disorders, and individual centers performing this surgery often lack sufficient cases to power research studies adequately. This study aims to develop a multicenter pediatric DBS registry tha…

   Stage

   Not phased

   Ages

   0 to 18

   Site

   Boston Children's Hospital, Boston, Massachusetts

   Run by

   Boston Children's Hospital

   See if you can join NCT06585618 on ClinicalTrials.gov

4. Abbott DBS Post-Market Study of Outcomes for Indications Over Time

   The purpose of this international study is to evaluate long-term safety and effectiveness of Abbott deep brain stimulation (DBS) systems for all indications, including Parkinson's disease, essential tremor or other disabling tremor and dystonia.

   Stage

   Not phased

   Ages

   Any age

   Site

   Beth Israe Deaconess Medical Center, Boston, Massachusetts

   Locations

   48 in total

   Run by

   Abbott Medical Devices

   See if you can join NCT04071847 on ClinicalTrials.gov

5. Target ALS Biomarker Study; Longitudinal Biofluids, Clinical Measures, and At Home Measures

   The goal of the study is to generate a biorepository of longitudinal biofluids-blood (plasma and serum), cerebral spinal fluid (CSF) and urine linked to genetics and longitudinal clinical information that are made available to the research community. To accomplish these goals, we will enroll 800 Am…

   Stage

   Not phased

   Ages

   18 and older

   Site

   Massachusetts General Hospital, Boston, Massachusetts

   Locations

   12 in total

   Run by

   Target ALS Foundation, Inc.

   See if you can join NCT05137665 on ClinicalTrials.gov

6. Registry and Natural History of Epilepsy-Dyskinesia Syndromes

   The Registry and Natural History of Epilepsy-Dyskinesia Syndromes is focused on gathering longitudinal clinical data as well as biological samples (blood, urine, and/or skin/tissue) from male and female patients, of all ages, who have a genetic diagnosis of epilepsy-dyskinesia syndromes. Through pr…

   Stage

   Not phased

   Ages

   0 to 30

   Site

   Boston Children's Hospital, Boston, Massachusetts

   Run by

   Boston Children's Hospital

   See if you can join NCT06967727 on ClinicalTrials.gov